Thursday, April 23, 2009

Is more always better?

As in so many areas of life, there is no direct causative correlation between the amount of money spent and quality of services, progress, or positive outcomes for the individual. There are times when the right care is more expensive and there are times when the right care, the best care or intervention for the individual is less expensive. Simply throwing money at a problem is never a good idea. Sometimes as with some of the research cited below, it can actually produce worse outcomes. For example in the case of Medicare expenditures:
What's Enough, What's Too Much?
“Most important, the second of the two articles by Fisher and colleagues (2) demonstrates that patients in high-spending regions had no better survival (if anything, slightly worse) than those in lower-spending regions. Separate analyses of a sample of all Medicare beneficiaries further showed no gains in overall patient mortality, functional status, or patient satisfaction. “
http://www.annals.org/cgi/content/full/138/4/348
and
Relationship Between Regional Per Capita Medicare Expenditures and Patient Perceptions of Quality of Care
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=2438036

Using our best Critical Thinking skills we need to learn from the best research and provide what works, which is not always and quite often not, what is most expensive.
Learning from Evidence in a Complex World
John D. Sterman, PhD
The author is with the MIT Sloan School of Management, Cambridge, Mass.
Correspondence: Requests for reprints should be sent to John Sterman, MIT Sloan School of Management, 30 Wadsworth Street, Room E53-351, Cambridge Massachusetts 02142 (e-mail: jsterman@mit.edu ).
"Policies to promote public health and welfare often fail or worsen the problems they are intended to solve. Evidence-based learning should prevent such policy resistance, but learning in complex systems is often weak and slow. Complexity hinders our ability to discover the delayed and distal impacts of interventions, generating unintended "side effects." Yet learning often fails even when strong evidence is available: common mental models lead to erroneous but self-confirming inferences, allowing harmful beliefs and behaviors to persist and undermining implementation of beneficial policies.
Here I show how systems thinking and simulation modeling can help expand the boundaries of our mental models, enhance our ability to generate and learn from evidence, and catalyze effective change in public health and beyond".
http://www.ajph.org/cgi/content/abstract/96/3/505
There is a great deal of research about what works best for children with developmental disabilities and mental health concerns. Quite often we spend a great deal of money on substandard treatment which do not provide the best outcomes for the child. In some situations the key is to spend a little more money for the right treatment, which frequently provides better results at a lower financial cost over the life of the child.
According to Leonard Bickman of Vanderbilt University, More is Not Always Better.
http://books.google.com/books?hl=en&lr=&id=gLWnmVbKdLwC&oi=fnd&pg=PA395&dq=cost+and+quality+of+mental+health+care&ots=0WR4Frur43&sig=gw2MTOx_5AYDOAFMPg5JLcBJNwM

Tuesday, April 14, 2009

It Takes a Family, Plus a Village

For thousands of years, people lived in extended families. In some cultures and in some parts of the world today you will still find many people living in an extended family system. When issues of hardship, disability or behavior outside of the norm, arise, the extended family is often involved. This extended family is often involved with raising all children within the family group and caring for the needy and elderly.
When you hear the phrase, “it takes a village” there is some truth and some inaccuracy because the village, often was the family.
In many parts of the world today, the extended family is not as close geographically or emotionally as it once was. The expectation and/or provision of support is significantly diminished. Grandparents, cousins, aunts and uncles often live in distant communities, regions, and sometimes even countries.
Raising children has often been challenging and the influence and assistance of both immediate and extended family crucial. Now with that assistance and influence less available in many societies and in many parts of the world, and unfortunately with more broken and sometimes even noxious families living in increased isolation, the challenge to raise healthy productive children is even greater. (Electronic communication through television, radio, the internet, texting and whatever else will be developed in the near future is not a poor substitute for real face to face dialogue; it is no substitute at all. While it may be an effective way to communicate information; it does not replace the more essential purposes of sitting down together, talking walks together, working together, being together, fishing, knitting, listening together and just talking.) Because it still takes a family plus a village, the composition of that village is an essential responsibility of the parents which if abdicated, will be decided by the children and society around them.
I grew up in a partial extended family situation with a grandmother either living with us or next door for most of my life and frequent contact with a couple of aunts and uncles and occasional contact with other aunts, uncles and cousins. These relationships provided me with an enriched childhood; however there was much more. I owe a great deal to scout and church leaders, close family friends, and others who were a part of my childhood. Though I am in my 50’s and have moved a number of times, I still have a close relationship with many of these individuals who are still living and their families. These people and new families are all a part of my village. My children did not live as close to extended family as I did but received the wonderful benefit of rich relationships though leaders, teachers and close friends with mostly high standards. With three of my four children out of the home, two of them especially continue to maintain strong relationships with both extended family and the villages that were a part of their childhood.
Here is my point, the family, the extended family and the village are the most important and constant influences in the life of a child. In almost all situations interventions that include those who have the most contact and influence are more powerful than interventions that only or even primarily include only the child and a therapist who will have a passing influence on and involvement with the child. Even if the intervention is intensive, if the parents and even other family members and perhaps even the village are not a part of the process and acting as co-therapist, then the long term positive impact will almost always be dramatically reduced, negligible, or possibly even non existent.
I know this from research and extended personal experience as a counselor/therapist. This does not necessarily mean that a family with a child needing intervention/treatment is dysfunctional, inept, or in any way inappropriate. Many excellent parents have children with difficulties and who require specialized intervention. Intervention that can be provided by those who have the most influence and contact with the child (family and other care providers) through consultation, collaboration and coaching, from an appropriately skillful therapist with occasional or intermittent direct intervention from the therapist has the most and sometimes only long term positive impact on the child.

Saturday, March 14, 2009

Strength Based

The program will be strength based. While this does not mean that the program ignores deficits or problems, the primary focus will be strengths. Safety should always come first; however, is the long term and clear emphasis on strengths and increasing appropriate behavior?

Best Practice/Evidence Based Practice

Providing a best practice, research documented and peer verified approach that matches the disability, disorder, issue, and individual situation for your child i.e. PLAY and ABA. Does the provider provide a well researched, developmentally appropriate, and best practice intervention that is known to provide best outcomes for a child of (age of your child) with (disability, condition, or diagnosis of your child)? They should be able to tell you exactly what intervention they are providing and provide you with the research to back it up. If they can not, they should have a very good explanation of why they can not. Does the therapist have the qualifications/training to provide this particular intervention?

Parent and other Caregiver involvement in therapy

When therapy is integrated into yours and the child's typical routines, more really is better. Are you an integral part of the therapy, are you being taught things that you can do to support therapy and is there follow-up to see how well you are doing and what you might do differently to adjust for better results for your child? Are you listened to as a partner and an expert on your child? Does therapy support and promote inclusion in typical healthy productive routines that your child's peers are involved with i.e. 4-H, scouting, school activities, church activities etc.?

Additional therapies are being provided for the child.

I.E. Speech, Physical Therapy, Occupational Therapy, or other type of specialist. Is there a global approach to your child? This does not mean that the other therapists have to be providing direct therapy. Sometimes this can be only for consultation and evaluation. This is not essential for every child but the need should be explored through the Functional Analysis or Behavior. Is this occurring or has it been thoroughly explored?

Collaboration with other therapies

Is there both communication and an integration or support of services being provided by other professionals. Does the therapist working with your child, collaborate with and integrate suggestions provided by other therapists?

Progress

Evidence that the child is making significant progress with the existing therapies. (May include maintenance for certain degenerative disorders or syndromes.) Can you easily recognize significant achievements made by your child, that were written as specific goals or objectives on your child's plan? Can the therapist show you data that is easily understood and that relates directly to your child's objectives?

Plan quality: MBO

Quality and appropriate (including developmentally), Measurable Behavioral Objectives. Does your child's plan contain objectives that are so clear and concise that you know exactly what your child is to do and when your child is to do it? Do you also clearly understand when your child will have achieved this objective?

Plan quality: FO

Quality and appropriate (including developmentally), Functional Outcomes.
Are the outcomes and goals on your child's plan something that s/he will be able to use as a part of his or her normal routine? Is this a skill that you would teach a typically developing child? Is s/he learning something that s/he could possibly use if s/he were living on his or her own?

Crucial Time Periods

For some interventions and disabilities this would include the first three years of life; however if Best Practice is provided, can often extend through age 8 or 9. This does not mean that treatment is not important for older children, it is. It does mean that early intervention is crucial if at all possible. This is partially because of what we know about early brain development (towards bottom of page). Treatment for some things, i.e. attachment and hearing loss are especially critical in the first few months of life.Some other crucial times can be times of transition, including between schools, moving, family transitions, puberty etc.Is therapy being provided at a crucial time period and if not, does the therapist acknowledge and understand the importance of these periods and is s/he prepared with a transition plan for these periods?

Medication

Medication is not needed for most children. If it is being prescribed, a children’s psychiatrist is recommenced if at all possible. If there is medication is there close collaboration between the therapist and the physician?

FBA

Existence of a functional behavioral analysis. (Also called a functional analysis of behavior.) (Must include, environment, setting events, sleep, diet, medical, communication, etc.) Was a functional analysis of behavior conducted, especially for a child three years or older?

Relationships

Does your child have a positive caring relationship with the therapist or do you believe that they will be able to develop one. (Knowing that the therapist personally cares about the individual is important for any therapy.) Do you have good rapport with the therapist? Does therapy build positive relationships?

Order of intervention

When the issues are behavioral and/or social/emotional/mental health, your child's therapist should be concerned with relationships and prevention, the environment, setting events, interactions and skill development, and individually treating the child, in that basic order with the exception of safety and immediate health concerns which must always be addressed first. There may be some slight variations to this order. Click here on Child Behavior and go towards the middle of the page for additional information.

Family Centered

The family is an integral partner in treatment and the parents are experts on their own child. With rare exceptions, such as child abuse and neglect, the values and culture of the family are honored and respected by the therapist. Individuals and families have beliefs in how change takes place and what they believe will be effective. The therapist is there short term, the extended family and support system are almost always there much longer than the therapist. The therapist needs to understand this, take it into account and use the strengths and resorces of the family system to help the family and child.